Tag Archives: komen

Pinktober Blues . . .

29 Oct
Cover of "Promise Me: How a Sister's Love...

So Nancy is calling this a "global movement" to "end breast cancer"? I don't think 19% to research is going to do it. I have no problem with money going to education or even to awareness, but, stop claiming you are "ending breast cancer", stop claiming you are "racing for a cure" because at your snail pace of 19% you are NOT.

This month has been rough in many ways. Partly it is because it is Pinktober. And partly it is because I just have not felt well. I have had a headache for 6 weeks now. That is nothing compared to what some of my friends have to endure. So, I feel weird even mentioning it. But, with those headaches I have the ever present fear of a recurrence. That is the lot for those of us who are lucky enough to be NED (no evidence of disease) . . . aches and pains take on a whole new possibility.

My headaches are getting under control a bit and I have actually had some breaks from it as well as just a lower intensity. So that is definitely an improvement.

I wonder though if my headaches are from Pinktober. I am serious. I really think it is . . . if not Pinktober, then Komen.

You see, it is difficult to be surrounded in a sea of pink, to be constantly asked if you want to make a donation “to breast cancer” whenever you are in a check out stand at a grocery store. It is difficult when you know that all of this pink hoopla results in very little of the purchase price going towards research, towards a cure. And, sometimes none of it goes to research, sometimes it simply goes to “awareness”. Well, that means it goes towards pink packaging.

I AM truly suffering from pink fatigue. I have been angry and depressed about it.

Please understand that if I thought any of this sea of pink would improve survival rates for breast cancer I would feel very differently about it. But, in all the years that Komen has been taking money in the name of “racing for a cure” the survival rates for breast cancer are largely unchanged. Those of us who are diagnosed with aggressive forms of breast cancer (even when detected early) do not have a great prognosis of long term survival. Overall survival rates are pretty much the same as twenty years ago. Early detection is NOT a cure.

So I am angry. I am angry that Komen, an organization whose mission is to “end breast cancer forever” only spends about 19% of the nearly 400 million they raise each year on research.

And, this year Komen has sunk to a new low with “Promise Me”, a perfume commissioned by Susan G. Komen for the Cure. Komen’s Promise Me contains chemicals not listed in the ingredients that are regulated as toxic and hazardous. But, because the FDA does not regulate perfume, there is no requirement to list these chemicals on the label. And, of the approximately $60 purchase price, only $1.31 goes to research . . . this after subjecting anyone who wears it to chemicals that are known to cause disease. Pretty sick, right?

So, when I stand in line at the grocery store and the clerk innocently asks me if I want to donate “for the cure” I literally feel queasy. For some reason I see myself lying on a table going through the surgery I had to remove both of my breasts . . . I actually picture that in my head. I donated those parts of my body for breast cancer, for survival, so that I could have the chance to still be here today. That is what I think about when I am asked to donate for “the cure”.

I am grateful to be alive. I am grateful for the RESEARCH that lead to Herceptin . . . without that drug I would surely be dead. I am so, incredibly grateful.

But, we can have more than Herceptin, we could have a cure. So, while I am grateful I am also very angry. Angry that an organization like Komen who raises the lion’s share of money in the name of a cure only donates 19% of that money to research.

I am angry that good people, with the best of intentions are taken advantage of, are lead to believe that they are really making a difference when they buy something that has a Komen ribbon on it.

I am angry.

I am sad that I have friends who will not survive cancer because we are wasting our time with pink hoopla instead of real money for real cures. And I fear that I too will succumb one day to this disease . . . that there will not be a cure in time.

Some of you know that I play standup bass and sing. I am in a small blues band. Tonight I was asked to fill in for a bass player in another band because that bass player’s mother passed away today . . . from cancer.

I immediately agreed to fill in. I’ve never sat in with this band before, but, hopefully I will be able to keep up with them.

I wonder if some day someone will be calling for a bass player to fill in for me . . .

Dear Susan G. Komen . . .

27 Sep

Breast Cancer Action has written a letter to Susan G. Komen requesting that SGK agree not to “pinkwash” and to recall their “Promise Me” perfume. Here, they ask you to join them I did. I hope you will too.

Here is what all the stink is about.

Susan G. Komen launched their “Promise Me” perfume (which shares the same name as Nancy Brinker’s latest book . . . talk about branding) in the name of breast cancer. “Promise Me” perfume sells for $59.00 with less than two dollars of the sale price going to breast cancer research.

Not So Sweet Smelling After All

But, here is where it really gets smelly:

After conducting an independent laboratory study, it was determined that “this perfume contains chemicals that are a) categorized as toxic and hazardous, b) have not been adequately evaluated for human safety, and c) have demonstrated negative health effects. Source: Breast Cancer Action.

Here are the chemicals that are of most concern that are contained in Komen’s “Promise Me” perfume:

  • Galaxolide, a synthetic musk that works as a hormone disruptor and is detected in blood, breast milk, and even newborns.*
  • Toluene, a potent neurotoxicant known widely as one of the toxic trio, has demonstrated a variety of negative health effects and is banned by the International Fragrance Association (IFRA).*

*Source: Breast Cancer Action

Breast Cancer Action coined the term “Pink Washing” to describe the pinkification of products that are actually known to increase the risk of breast cancer or are thought to be linked to an increase in breast cancer. Now it seems that Komen has produced their own pinkwashed product: their “Promise Me” perfume.

I have long thought that pink bottles of Mike’s Hard Lemonade and other alcoholic beverages that go pink for a cure to be hypocritcal at best. Alcohol consumption is known to increase a woman’s risk of breast cancer. But, when ever I have complained about these pink bottles, many take issue with why I would care where the money comes from . . . after all, isn’t it just a good thing to raise money for breast cancer research?

But, do people know how few of their dollars spent on these pinked products actually go to research? Probably not. And, you would think that a product commissioned by Komen would actually serve up more money “for the cure” . . . but, out of the $59.00 purchase price for “Promise Me” less than two dollars goes to research. (For more on where the money DOESN’T go see Cancer Culture Chronicles: “Komen By The Numbers: 2010 And Still No Answers” and Uneasy Pink’s: “Quick Math” and for some more of my own snarkiness: “Pinktober Comes Early”

Breast cancer action is taking Komen on. They have asked Komen to join them in a promise not to engage in pinkwashing and to recall their “Promise Me” perfume.

“We are genuinely shocked to see a breast cancer organization marketing a product containing multiple chemicals categorized as toxic or hazardous” (Breast Cancer Action)

I hope you will join Breast Cancer Action, go to their link and you can use their letter, in asking SGK to do better, to honor their promise. It only takes a moment to do.

Here is my letter . . .

Dear SGK:

I am disgusted with what I believe began with the best of intentions and has now become a giant pink money maker. I am NOT alone in my feelings. There is a movement, a group of women who are educated, strong and angry. We know you hear our voices, but, you have yet to respond. We are waiting, we will not let up.

We feel as though you are profiting over breast cancer. We feel that you really are not racing, or even slowly walking, towards a cure. I went to your OC race this past weekend and I saw the same thing that I have been inundated with ever since my diagnosis – you sell this idea that you are raising money to “CURE” breast cancer and yet you preach early detection as the solution instead. You have even trademarked the words so that no one else can use it and then waste valuable time and resources to sue anyone who uses your “for the cure” language. This makes it seem like you are more concerned about protecting profit motives than actually racing after a cure.

The reality is that even with early detection, women (and men) DIE of breast cancer. You wrap up poster women – take credit for their survival – all in a pink bow and sell this idea that it will all be okay if we just get screened early. Early detection is NOT a cure. Wake up. We have and we are NOT going away.

Facebook is credited to helping Egyptians take to the streets and to revolt.

There is an online movement, a revolution of sorts. I am one of many who are spreading the word. We are all already aware of breast cancer. The NEW AWARENESS that we need is how little money goes to actual research. (I hear that only 19% of the $389 million dollars that Komen raised in 2010 went to research). 19% is NOT enough!

Stop pinkwashing. Promise me this: stop knowingly contributing to the proliferation of products that not only increase the risk of breast cancer, but, also increase the risk of all cancers. We know you can do better. I, personally, will not rest until you do.